News and updates
Latest updates from the Lupus Center
First and foremost, a big thank you to our patient advisory board for all your effort improving the patient experience at the Lupus Center. Your work with our providers to identify and address important issues in the care of lupus patients is integral to our success.
Spring Community Lupus Forum
The Brigham and Women’s Lupus Center’s Spring Lupus Forum was a tremendous success! This annual community forum was proudly sponsored by the Lupus Foundation of America and Sportsmen’s Tennis and Enrichment Center, and took place virtually on Zoom on Saturday, June 11th. Lupus patients, family, and caregivers attended and heard from our Lupus Center physicians and invited speakers on important topics in lupus such as new medications and trials, cardiovascular disease, and navigating life with lupus. Please feel free to visit to recorded forum at the link below.
Meeting Recording Link: https://www.youtube.com/watch?v=PS1FppjMOMk
GLADEL (Grupo Latino Americano De Estudio De Lupus – Latin American Lupus Study Group)
New web site: www.gladel.org
The essential news is that it is now available in three languages, Spanish, Portuguese and English. The publications produced by the group have been updated and will continue to be so. An Education program for general physicians and rheumatologists is in the pipeline.
The part related to patients has now been extensively renewed and shows the program: “Let’sTalk about Lupus” / “Hablemos de Lupus” / “Falando de Lupus” both in Spanish and Portuguese which has been prepared by Emory University and GLADEL and endorsed by PANLAR, and has already had over 52 million hits. Finally, the new page has a repository of much of the material presented at the “10th International Congress on SLE”, 2013 in Buenos Aires which is available for download (videos of conferences, slides of presentations, etc.). Many of you participated! A lot of the information is still current.
The Lupus Patient Assistance Fund
To help aid those affected by lupus, Brigham and Women’s Hospital, through the help of generous donors, have established the Patient Assistance Support Fund for Lupus. This fund looks to help Lupus patients receive the care they need and ensure that medications and hospital visits are not an additional burden to these patients or their families. The fund provides aid in a myriad of forms including subsidized medications, transportation to and from appointments, and aid to patients so they can afford necessary therapies and treatments. The generosity of our donors combined with the clinical efforts of our outstanding providers and researchers helps improve the lives of those living with lupus. We invite you to join our team at The Patient Assistance Support Fund for Lupus and support these patients and their families in any way you can.
Lupus Support Group
Lupus Lights New England is a peer-led support group for patients and families/caregivers impacted by lupus. Sponsored by the Lupus Foundation of America and supported by BWH Lupus Center, this group offers a relaxed way to connect with others dealing with this autoimmune disease. Meetings are typically held virtually on the 4th Wednesday of each month at 7pm. Please click here for more information on upcoming meetings and registration.
To learn more about the group please email firstname.lastname@example.org or follow us @LupusLightsNE
Keep an eye out for our Spring/Summer newsletter coming soon!
Please feel free to check our community tab at the top of the page for more information on resources available to lupus patients
Do not hesitate to reach out and contact us if you have any questions or comments about our page!